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November 2019

Hospital Visit

Saturday, November 23, 2019

Hospital Visit

From 9 November 2019 for approximately nine days I was in hospital having and recovering from kidney stone removal.

Truly, it’s another world going into hospital it’s another realm completely. Has very vague references to the outside world, the hospital’s internal processes are very much of their own making and it probably be entrenched for a number of years.

After about three days of being in there despite myself, I became used to these routines and I kind of relaxed into it. I surrendered in many ways my sense of self, because I had so much physical involvement with the nurses and medical staff in general that any pretense to modesty went out the window.

There were long periods of being extremely bored, where nothing particularly happened and again, I had to surrender my sense of time passing to the hospital routine!

My biggest challenges while in their was communicating the basic need of not being released to soon as I had tubes and bags coming out of me and I really needed to communicate that releasing me to quickly from the hospital would radically mean that I couldn’t function properly at home.

I basically waited for this operation roughly about a year and four months, so I had a lot of time to over this. Since release from hospital I have actually had a rethink about medical procedures and so forth; no longer do I stress unnecessarily about the idea of these things if they need to happen, they will happen, hopefully for my own good.

The fact that I ended up there for nine days I think was a win for me, because it meant that I had an opportunity to recover properly before coming home.

wheelchair shenanigans

Blog (wheelchair shenanigans)

As many of you might know I have two power wheelchairs:

1. The hospital funded wheelchair which I gently used as a daily driver just because of its size and nimble turning circle, plus also this wheelchair if Repairs are needed will be funded by the state. So this means that in many ways the TA (hospital funded wheelchair is more practical uses an everyday driver)

2. The second wheelchair which I personally own is called A Frontier V6 by magic mobility of Australia. This wheelchair is truly bigger than life, and this is the wheelchair during the summer that I prefer to use if possible. Recently I had new tires fitted at a pretty reasonable price and I started using this wheelchair again particularly as my everyday driver wheelchair due to given service soon.

Yesterday I took the frontier out on a reasonably long run for the first time August of this year, I think it is a real advantage to have two different kinds of wheelchairs on tap for different use cases

The quality of caregivers

Saturday, November 23, 2019

Blog entry

The quality of care givers if you are dependent on people to assist you with daily living is imperative! Just putting anybody into the caring routine does not work! They must be quality people with personal dignity and empathy towards others.

The most difficult times I have is dealing with people that don’t have communication skills, don’t have the desire to actually be in your home and don’t view the work seriously!

Over the 27+ years that I’ve had experience with carers I’ve seen the good bad and the ugly in terms of service provision. Unfortunately, because of the numbers now, it is very difficult to get the quality up of the individual service you get.

Yesterday and today I’ve had some challenges with getting clearance support luckily right in the middle of writing this blog entry this had been resolved.

There is a limited pool of very good carers, for high needs people like myself there is a certain stress level involved with this, this has always been a case, but I think communication has improved I’m pleased to say